Sickle Cell Event resources - Saturday 8 March 2025

Thank you for attending the Lewisham and Greenwich NHS Trust Sickle Cell and Thalassaemia Awareness and Fun day.

We hope you enjoyed the day as much as we did. 

On this page you can access information shared on the day about our Sickle Cell and Thalassaemia service and supporting networks, as well as comprehensive resources on how to help you and your child manage their condition.

Resources to download:

• Improving Black Health Outcomes - BioResearch poster [pdf] 5MB

• Improving Black Health Outcomes - BioResource leaflet [pdf] 7MB

• Improving Black Health Outcomes research study poster [pdf] 3MB

• Ready steady go programme: easy-read-booklet [pdf] 1MB

• Sickle Cell Disease - a parents guide [pdf] 1MB

• Did You Know guide, age 5-10 [pdf] 376KB

• Did You Know guide, age 11-16 [pdf] 900KB

• Familly support services with Roald Dahl Nurses flyer [pdf] 962KB

• Roald Dahl Nurses - Marvellous Family Support Service leaflet [pdf] 663KB

• Adolescent Mental Health and Wellbeing Guide [pdf] 290KB

• Transition: moving into adult care - information for young people and families [pdf] 3MB

• Broken silence poster: what to do if you suspect your pupil is having a sickle cell crisis [pdf] 71KB

• Sickle Cell and Trait: a guide to higher education policy [pdf] 390KB

• Sickle Cell Disorder and Trait - what to do next [pdf] 73KB

• Guide to Sickle-Cell and Employment [pdf] 301KB

• Hospital passport template [doc] 929KB

• Personal Independence Payments (PIP) leaflet [pdf] 585KB

Online resources and information: 

• Resources for Schools and Parents

• Sickle Cell and Young Stroke Survivors - SCYSS — learn more

• Online lectures series with workshops — a programme on the social aspects of Sickle Cell, aimed at University level students